About
Heroes for Hallie Grace is a Savannah-based nonprofit founded in memory of Hallie Grace, a courageous “Butterfly Warrior” born with Epidermolysis Bullosa (EB), a rare and devastating genetic condition. Our mission is to raise awareness, fund research, and provide tangible support to families affected by EB and other medically fragile conditions.
Through initiatives like the annual Hallie Grace Memorial Butterfly Ball, family assistance grants, educational outreach for medical professionals, welcome and memorial care packages for EB families, and patient advisory board development, we strive to bring hope, resources, and community to those navigating unimaginable challenges.
We believe every child deserves comfort, dignity, and a legacy of love — and we work every day to turn grief into purpose, and purpose into impact.